Hello and welcome, my name is Brian Dillon. I am a pALS (person with ALS).  I have ALS (Amyotrophic Lateral Sclerosis) a Motor Neuron Disease also known as ‘Lou Gehrig’s Disease’. Formally diagnosed Mar. 23, 2010,  with Bulbar onset ALS, I can recall symptom onset as early as Aug. 2008.  I live my life fighting my affliction with ALS, every breath, every move, each word. I eat, drink and sleep ALS everyday for the rest of my life – however long that may be. 

ALS Fighter, Brian Dillon
Sept. 2010

ALS – These three letters change lives, FOREVER

Discovered in 1869, medical/research science has little to offer as a treatment, nor can they save the life of an ALS patient.  It’s sad to know that I and  many others suffer living with this disease. We make do with what we have as best we can. pALS collectively need your help.

I get by living on a fixed income from Social Security Disability.  I choose to donate what I can, when I can, while still trying to support my family as I fight my debilitating ALS disease.  

I choose to advocate ALS awareness and I choose to participant in various fundraising events which help by providing services and support for pALS and their families.

Please DONATE, any amount
is sincerely appreciated.

ALS is not contagious.  Choosing to help can be.

Will you choose to help?  Will you become involved?

Will you volunteer?  Will you Donate?

Only you know your willingness to help. Only you know of your compassion for those less fortunate than yourself. Only you know if or how much you can volunteer and/or donate.

Each organization listed under ‘Blogroll’ has helped me in some way or another. The wonderful people from these terrific organizations, I can’t thank enough. Please, take some time to visit their links.

I can guarantee you thanks from pALS (people with ALS) and their families for your kindhearted support, much humbled gratitude for your efforts and sincere appreciation for your generous donations.

Pictured above is a partial representation of my ALS walk team.  ‘Team Dillon’ was created  to honor me. I would like to honor and express sincere appreciation to all who support me. Your kind words of encouragement, your donations, your fundraising efforts, it all means a great deal to me. I thank you, from the bottom of my heart.

My affliction with ALS has broadened my extended family. I have so much admiration for the people in the medical/research professions who choose to help pALS (people with ALS). People who volunteer, non-profit organizations, common everyday people like you. I have online friends from all over the world who support me, and I wish for each and every one of you to know how much I appreciate your love and support. Your continued generosity, love and support encourage me to continue battling my ALS.

I am humbled and sincerely touched by your love and support, thank you.  

I wish to express sincere gratitude and a special thanks to Richard Marti. Your support has made it easier for my family and I to cope with my ALS.



13 Responses to Home

  1. sukhim says:

    Nice job Brian.. Do continue to do so

  2. steve cox says:

    I was diagnosed with als last May. I am going throgh or will go through many of the same things. I haven’t noticed any mention of hospice. I was referred to Crossroads hospice by the Kansas City als association. They have beena huge life changer for me. A huge blessing. I would recommend all als patients, family,friends….check into hospice.

  3. This particular posting ALS Fighter, Brian Dillon | ALS Fighters – Will Not Surrender
    Lliving Life, Fighting ALS, provides extremely good advice
    and I discovered specifically what I was initially hoping for.

    Thank you.

  4. Carol Rosol says:

    Hi Brian,
    I heard about you through my dear friends Valerie and David and want you to know that I am praying for you. Your attitude is an inspiration to me. My friend’s brother Eddy was diagnosed with ALS
    last October and it really hit home. I am praying that very soon there will be a breakthrough and a cure for ALS.

  5. Brian,
    Your friend, Dan Bergin attends the church I pastor, First Bible Baptist Church in Plainville, CT. Dan brought your name up at our Wednesday evening prayer meeting about 3-4 weeks ago. I wanted you to know that we are all praying for you and your family. We love you, Brian, even though we have never met. Maybe some day soon we can get together for a visit so I can get to meet you personally.
    Indebted to Christ,
    Pastor Tom Benson
    Ephesians 3:20-21

  6. kimberly vicino says:

    Hi Brian, i was able to find a place to begin to help..I am doing the walk to defeat ALS in Sarasota Fl on April 14 in your honor… I am going to have my hubby and children walk too!! 🙂

  7. kimberly vicino says:

    Dear Brian, I stumbled upon your facebook page and was very moved by your jouney. I lost my grandmother to ALS a few years ago and ever since have been bothered by how little people know about this disease. Most people say they have heard of it, but few I come across actually know what this disease is all about. This bothers me….I feel compelled to do something, but I don’t know where to begin other than showing my support. Please know that my family and I are keeping your and yours in our hearts and prayers….Kimberly Vicino

  8. Brian, Really nice job building awareness and fighting for a cure. I am 42 years old with a 9 year old daughter and an 8 year old son. Just a few months ago in November 2011 I was diagnosed with Bulbar onset ALS. I can move around right now but am constantly fatigued with breathing and swallowing problems as well as paralyzed vocal chords. I am still digesting the diagnosis but will certainly play a huge role in fundraising for this cause. Will stay in touch

  9. Maureen says:

    Hi Brian,
    I’m in the same boat as you – bulbar ALS. I’ve been going through the same tests and working with Dr. Whitaker. I like him very much. My Dad died of ALS which initially affected his legs. Right now my area is basically the tongue – speech is a bit slurred and moving food around in my mouth is more of a process and”twitches” in the chin & nose areas. I hate to think about the future …… Hang in there; it’s all we can do.

  10. Nancy Lukos says:

    I wrote a note yesterday after reading your journey through all this, but I didn’t see it anywhere. Maybe I’m doing something wrong. Anyhow I applaud your attitude, sense of humor while going through this terrible disease. My thoughts and prayers are with you.

  11. Janet Mancuso Gross says:

    We never know why God chooses us for certain walks, but I can say that your fight, convictions, and ability to communicate are a vital tool for fellow ALS sufferers. This site is a well-designed portal. I thank you for allowing us the opportunity to experience your pain in order to open our eyes. God bless you, your family, and the lives that are touched through your window.

  12. ramartijr says:

    My Pleasure Brian. I hope I can help more. I am looking forward to working with ALS Connecticut and helping the who organization in advocacy and fund raising online!

  13. Liz says:

    Brian, NICE JOB on your website. It really came out nice. Thank you Rich Marti for all you help and support for Brian. I’ll be back to visit often. All our LOVE to you, Mike & Liz xoxoxoxo

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